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About OHSU/OIDD

(OIDD) at (OHSU) is a component of the of OHSU. CDRC is located on the OHSU campus in Portland, Oregon, the state’s largest city, 50 miles from Salem, the state’s Capitol City. The campus supports a state-of-the-art Biomedical Information and Communications Center with large holdings of books and journals and all staff have ready on-line access to information worldwide. The campus is networked with centralized computer and electronic communication capabilities.

The CDRC building is a fully equipped training and office facility, with space available for offices, conference rooms, large multi-purpose rooms, and classrooms. The OHSU library supports the Disabilities Library at CDRC, which contains the region’s largest collection of holdings on disabilities and special health needs. The CDRC library currently includes a special collection for families of children with special needs, and OIDD also maintains specialty holdings in health and disabilities. Through the National Center for Self-Determination and 21st Century Leadership, OIDD maintains the clearinghouse materials of over 300 materials on self-determination and leadership for individuals with disabilities. The materials include curriculum guides, evaluation and quality assurance tools, CD ROMs, instructional videos, self-advocacy newsletters, and other resources for use by professionals as well as persons with disabilities of all ages. Currently the materials are databased and resource information is brokered to the public. The database was intentionally set up to be transitioned for use on the Internet in the future.

The OIDD has a 33-year history of significant contributions to the field of disabilities through teaching, research, model demonstration and dissemination of information. OIDD attracts students from around the country and the world to train in interdisciplinary activities as they relate to persons with disabilities. The OIDD's mission is to enhance the well being and quality of life of persons with disabilities and their families. The OIDD collaborates with persons with disabilities and their families to develop new knowledge and best practices, train leaders, and effect systems change. Its many programs include:

AAC Application in Dimentia: This project seeks to determine what components of augmentative and alternative communication (AAC) tools improve conversational interactions for individuals with moderate dementia, and is AAC tool use associated with functional improvement? If we could understand what components of a conversation and affect discourse, then we could maximize conversations, improve functional outcomes, and reduce miscommunication between persons with dementia and their caregivers or family members.

Accessible Airline Transportation: This project seeks to determine the accessibility limitations of air travel for persons with disabilities and develop a community-based training curriculum to educate airline personnel in disabled passenger support techniques.

ADD-University Affiliated Programs - University Center for Excellence in Developmental Disabilities Education, Research & Service: This grant supports the Oregon Institute on Disability and Development (OIDD). which continues its 35-year history of promoting the well-being of persons with developmental disabilities through training, research and evaluation, community services, technical assistance, dissemination and policy development.

: To develop an integrated web site to serve as a portal to make information accessible on the ADD Portfolio of programs (UCEDD’s, PNS’s & P&A’s). The web site will showcase the information, resources, and research from all programs for use by multiple audiences. The site will address the interface needs of people with developmental disabilities through the creation of multi-sensory and icon-based methods of interaction using a variety of effective, affordable and accessible electronic communication mediums.

Augmentative & Alternative Communication (AAC) Technology Management by Informal Caregivers: Persons with amyotrophic lateral sclerosis (ALS) who cannot speak or write due to the progressive nature of the disease use augmentative and alternative communication (AAC) technology for expression. The persons with ALS (PALs) must rely on caregivers to help set up, maintain, adapt, and upgrade the equipment as their neurodegenerative disease progresses. Since the PALs are dependent on the informal caregiver for technology support, it is crucial that caregivers see the benefits rather than burdens of these tools for social interaction and daily communication. This project's long-term objectives are to examine the relationship between AAC technology use by persons with ALS and their informal caregiver's perception of role strain. Also, the relationship between the informal caregiver's attitude and skill base with AAC technology and perceived level of role strain will be examined.

Community Environmental Assessment: Rather than measuring person variables in understanding disability, this project will develop an integrated multi-method approach to measure a community's level of accessibility/enablement through a process of community engagement and use of extant data. Effectively measuring community accessibility through the explication and depiction of extant data at the local level can provide the means for participatory social change a low cost, using available resources.

Fostering Futures - Understanding the Educational Experiences & Outcomes for Youth with Disabilities in Foster Care: This project will investigate the educational experiences and outcomes of high school youth with disabilities in foster care. In collaboration with Portland Public Schools and social service agencies in Portland, this will involve the collection of extant school data for foster care youth who experience disabilities, qualitative investigation of the educational experiences and barriers youth encounter, and the identification of strategies to promote their school success.

Gender & Transition Project: Understanding the Role of Gender and Disability in Transition Planning: This project will utilize a multi-method, multi-perspective approach in investigating the quality of transition planning for girls, particularly minority girls, in transition planning for students graduating from special education. This involves (1) a survey study of youth in special education, their parents and educators, in order to gather quantitative information on the extent to which factors which promote successful transition planning are present for boys vs. girls with disabilities; (2) evaluation of the transition component of individualized education plans (IEPs) for girls vs. boys in special education to assess whether compliance with the mandates of IDEA and reflections of best practice vary by gender; and (3) a qualitative investigation of the barriers to transition planning for girls with disabilities, and the identification of strategies to promote successful transition.

Health Care Occupations: Individuals with disabilities are significantly under-represented in health care-related occupations (nurses, nurses aides, dental assistants, pharmacy packaging, massage therapists, central supply couriers, phlebotomists, and medical records specialists). In addition, one of the greatest challenges in the disabilities services field is the recruitment and retention of qualified staff. Persons with disabilities represent an untapped labor pool for these career areas. The goal of this project is to increase the number of individuals with disabilities in health care and human services jobs. This project will assist at least 180 individuals to participate in health care and human services career training and education, and to assist at least 90 individuals to obtain unsubsidized employment in these career areas. The project will be implemented at four key sites in Oregon and Washington, and include individuals who experience the full range of disabilities, including developmental, mental health, physical, sensory, and learning.

Healthy Lifestyles Evaluation: The primary goal of this project is to evaluate the effectiveness of the Healthy Lifestyles for People with Disabilities training curriculum. Participants in Healthy Lifestyles training events will be assessed before and after participating and over time to evaluate the effectiveness of the curriculum in establishing and maintaining long-term lifestyle changes.

: The major goal of this project is to promote the health status of children (and their families) with neurodevelopmental and related disabilities by training professionals for leadership roles, collaboration with other agencies, and participation in policy development on health care.

Making Dysarthric Speech Intelligible: Dysarthria is a motor speech impairment due to weakness or poor coordination of the speech muscles. Current assistive technologies can help certain types of dysarthria through filters, amplification and enhancement, but many dysarthric persons suffer from speech problems that require forms of speech modification that is much more profound and complex. The goal is to create innovative algorithms based on speech recognition, speech synthesis and voice transformation to directly improve assistive technology for use by dysarthric people, to produce insights that are broadly useful for other speech technologies, and will include participation by persons with dysarthria at all levels: prioritization, development, outcome measurement and active participation.

Men's Personal Assistance Services Abuse (PASA) Research Project: The purpose of this project is to increase the identification, assessment and response to abuse of men with physical disabilities and physical and cognitive disabilities living independently in the community by formal and informal personal assistance service (PAS) providers.

: The primary activities of the Region X Disability and Business Technical Assistance Center, operationalized as the Northwest ADA/IT Center, and its three state affiliates in Alaska, Idaho, and Washington, are to provide to covered entities (persons with disabilities, state and local governments, and businesses): 1) technical assistance 2) training; and 3) information using federally-approved documents on their legal obligations and rights established by the Americans with Disabilities Act (ADA) and other state and federal disability laws and regulations, as applicable. In addition, the Northwest ADA/ITCenter and its state affiliates will: 1) identify local educational entities (i.e., school districts, universities, colleges, etc.) in the region; and 2) provide technical assistance, training, and disseminate "best practices" information to educational entities on accessible information technology as such information becomes available through the new National Center on Accessible Education-Based Information Technology and from other sources.

: The major goals ofthis project are to assess and prevent secondary conditions associated with disability andpromote the health of persons with disabilities. The OODH conducts its activities based on an integrated paradigm that incorporates medical, functional,and social approaches to disability. OODH will sponsor Celebrate Wellness, a statewide annual conference promoting the health and wellness of Oregonians with disabilities, allowing conference participants the opportunity to develop the necessary skills and knowledge base to lead a healthy lifestyle. It will also provide a unique opportunity for a diverse group of individuals to come together and share their knowledge, expertise, and experiences in the area of health and wellness.

Oregon Violence Against Women with Disabilities Technical Center: The aims of the Technical Assistance Center are to (a) increase awareness among domestic violence, disability and criminal justice organizations and agencies about the nature of violence, stalking and sexual assault experienced by women with disabilities; and (b) build the capacities of these organizations to provide an accessible, coordinated community response to violence against women with disabilities.

Right to Communicate III - Making the Right to Communicate a Reality for Young Children with Multiple Disabilities- An Early Childhood Outreach Project: This project will be an extension of highly successful outreach activities funded by two previous grants that have targeted communication intervention in the early childhood population. First, we hope to develop an outreach project of national scope to show teachers, speech-language pathologists and family members how to teach the earliest forms of communication to young children with complex and multiple disabilities. The targeted strategies are applicable across the life span and many individuals who have not been exposed to appropriate communication intervention at an early age are able to learn to communicate effectively once an appropriate system is targeted. Second, we will expand the geographic area to be served to include the entire country. Third, we will develop an online class based on this training so that the training will become widely and permanently available without the support of grant funding.

Web Accessibility for People with Disabilities: The intent of this project is to better understand the difficulties individuals with cognitive impairment encounter when attempting to access information on the Internet. Internet access is important because it provides resources and current information as well as socialization and support opportunities.

 

 


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